Shannon Open for Cystic Fibrosis

The all-volunteer Shannon Open was started by family and friends of Shannon Harris, a vivacious Highland Park resident who graduated from Cretin-Derham Hall High School. Shannon was diagnosed with cystic fibrosis when she was 2 years old. In 2014, Shannon underwent a double lung transplant. In 2016, her body rejected the lungs and she went through a second transplant. On November 14, 2017, Shannon's battle ended when her lungs and body could no longer keep up with her will and strength.

All proceeds from the Shannon Open go directly to the Cystic Fibrosis (CF) Foundation and the University of Minnesota’s CF Center. The CF Foundation is a nonprofit organization committed to finding therapies and ultimately a cure for CF, and to improving the lives of those with the disease. The University of Minnesota CF Center was founded in 1961 to develop approaches to understanding and treating the complications of CF and is accredited by the CF Foundation. Some of the proceeds from last year’s Shannon Open are being used to fund a gathering of youth with cystic fibrosis. 

“Money buys science and science buys life.”    

~Cystic Fibrosis Foundation

 

CF Facts:

• Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive system

• 30,000 children and adults in the US (70,000 worldwide) have this disease

• About 1,000 new cases of CF are diagnosed each year

• More than 70% are diagnosed by the age of two

• More than 45% of the CF patient population is age 18 or older

• Life expectancy for patients with CF has risen dramatically with new medicines and interventions. In the 1950’s CF patients usually didn’t live past grade school

• The Cystic Fibrosis Foundation receives no government funding and relies on donations

• Patients with CF typically have medical costs of around $76,000 per year for adults - 15 times greater than the average adult

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